Living With Castleman’s Disease
Although Castleman's Disease is rare, that doesn’t mean that you are alone. There is a community of patients, caregivers, and disease advocates who are all affected by the disease. Together, they are working to raise awareness, advance knowledge, and help support each other in living with the disease.
This section provides information and resources that may help you and your caregiver(s) better manage your illness, including:
- Tips for speaking with family and friends about your Castleman’s Disease
- Personal stories of other patients living with Multicentric and Unicentric Castleman’s Disease as well as a caregiver
- Sample questions to ask your doctor about having Castleman’s Disease
- Information about organizations formed to provide education, advocacy, research, and services for people just like you