Connecting With Others

As you move forward in living with Castleman’s Disease, one of the most important things to remember is that

YOU ARE ONE . . .
BUT YOU ARE NOT ALONE

Castleman’s Disease is rare, but there are other patients and caregivers who are also affected by the disease. And there are organizations that have been formed to provide education, advocacy, research, and services for people just like you. We encourage you to connect with the Castleman’s Disease community.

When you connect with others who are affected by Castleman’s Disease, you may find that they have a unique understanding of what you are going through. And that kind of connection can offer a deep sense of comfort and hope.