Castleman’s Disease Resources
Here is a list of organizations committed specifically to raise awareness and educate you about Castleman’s Disease.
Formed by a team of physicians, researchers, and patient advocates, the Castleman Disease Collaborative Network (CDCN) is dedicated to accelerating research and therapy for Castleman’s Disease through global collaboration, funding high-impact research grants, and patient engagement.
RareConnect is a joint project of EURORDIS and NORD with resources and online communities to help patients with rare diseases interact with and learn from their peers and medical experts. RareConnect Castleman Disease Community is a joint project between the Castleman Disease Collaborative Network (CDCN), Castleman’s Awareness and Research Effort (CARE), and the International Castleman’s Disease Organization (ICDO), which offers details on these advocacy groups, information about living with Castleman’s Disease, and a live forum. Members of the community can also contribute personal stories and submit questions.